Welcome to inVolve

inVolve updates

New and upcoming

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  Patient Education and Information Forum: Adelaide

  July 3rd, 2026 August 25 to 25 2026

  This forum provides a valuable opportunity for patients, families, carers and supporters to hear from leading experts, learn about the latest developm...

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  Bringing the Patient Voice Forward: VCCC webinar

  June 9th, 2026 June 15 to 15 2026

  Join Walter and Eliza Hall Institute's Lucy Gately, as she shares insights from a patient reported outcomes registry, developed to bring the patient v...

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  NRF Grey May: Cocktail Event

  May 25th, 2026 May 29 to 29 2026

  Join the Neurological Research Foundation (NRF), for a meaningful evening as we celebrate the end of Grey May – Brain Tumour Awareness Month....

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  9th Annual Awareness Raising Event

  May 20th, 2026 May 27 to 27 2026

  Join the Brain Cancer Group for their annual brain cancer awareness event at the NSW Parliament House. Click here to find out more. ...

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  Experience of seizures survey: Your voice matters

  March 25th, 2026 July 13 to 31 2026

  You are invited to take part in a short survey exploring the experience and impact of seizures for people living with grade 2 IDH mutant glioma. T...

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  PBAC consumer comments now open

  January 15th, 2026 January 9 to 21 2026

  Servier has re-submitted an application to the Pharmaceutical Benefits Advisory Committee (PBAC) for the consideration of vorasidenib for reimbursemen...

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  Walk4BrainCancer Perth

  November 10th, 2025 November 16 2025

  Join Cure Brain Cancer Foundation for a 5km walk along South Perth Foreshore and raise much need funds for brain cancer research. ...

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  Walk4BrainCancer Melbourne

  November 10th, 2025 November 23 2025

  Join Cure Brain Cancer Foundation and the wider brain cancer community for a 5km walk around Albert Park Lake on Sunday 23rd November. ...

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  Living with Uncertainty webinar

  October 20th, 2025 October 29 to 29 2025

  Living with brain cancer can be challenging and bring up many emotions. Join Prof Haryana Dhillon and Dianne Legge, as they navigate the experience of...

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  Walk 4 Brain Cancer, Adelaide

  September 1st, 2025 September 28 2025

  Join us at Elder Park this September and Walk4BrainCancer to raise much-needed funds for brain cancer research....

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  Head to the Hill 2025, Parliament House, Canberra

  September 1st, 2025 October 28 2025

  Hosted by the Brain Tumour Alliance Australia, join us at Parliament House in Canberra, for Head to the Hill 2025. ...

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  Update on PBS Listing decision for vorasidenib

  August 25th, 2025

  We would like to share an important update about vorasidenib.  The Pharmaceutical Benefits Advisory Committee (PBAC) has decided not to reco...

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  Invisible Brain Cancers: White Paper Launch

  August 13th, 2025 August 26 to 26 2025

  The Australian Brain Tumour Collaborative (ABTC) are proud to share with you the "Invisible Brain Cancers” white paper, which reports for the first ...

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  BTAA Patient Education and Information Forum

  August 4th, 2025 September 14 2025

  A unique opportunity for patients and carers to access information and learn more about the latest scientific advances in brain tumour treatment and c...

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  Hunter Brain Cancer Forum

  July 3rd, 2025 July 25 to 25 2025

  The Mark Hughes Foundation invites all primary brain cancer patients and their carers to join us for the 8th Hunter Brain Cancer Forum. ...

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  Cancer Lived Experience Survey

  June 10th, 2025 June 10 to 15 2025

  Rare Cancers Australia invites people living with or caring for someone with cancer, to take part in an online research survey, to help better unders...

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  MHF Beanie for Brain Cancer Charity Golf Day

  June 4th, 2025 June 27 to 27 2025

  Swing for a cause and help raise much needed funds to find a cure to brain cancer...

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  Get inVolved Webinar 2 – Watch on demand now

  May 13th, 2025

  Watch the on-demand recording of the second Get inVolved – Navigating Glioma Together webinar: Understanding the Pharmaceutical Benefits Scheme: You...

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  Brain Tumour Research in Action: Update & Lab Tour

  May 7th, 2025 May 24 to 24 2025

  Join NeuroSurgical Research Foundation (NRF) for a rare opportunity to go behinds the scenes of brain tumour research. This free public event includes...

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  Get inVolved Webinar 1 – Watch on demand now

  April 26th, 2025

  Watch the on-demand recording of the first Get inVolved – Navigating Glioma Together webinar: Understanding low grade glioma and IDH mutation. I...

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  Brain Tumours Online – Tailored information and supportive care for people impacted by brain tumours.

  April 7th, 2025

  Brain Tumours Online is a place where anyone in Australia affected by a brain tumour can find trustworthy and up to date information, access online to...

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  8th Annual Brain Cancer Awareness Event, NSW Parliament House

  April 2nd, 2025 May 27 to 27 2025

  Hosted by The Brain Cancer Group, join brain cancer specialists, researchers, ambassadors, patient and carers, to learn more around this year’s them...

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  Get inVolved: Navigating Glioma Together – Webinar Series

  April 2nd, 2025 April 30 2025

  Understanding the Pharmaceutical Benefits Scheme: Your Voice Matters...

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  Great Wall of China Trek 2025

  January 16th, 2025 May 2 to 10 2025

  Join Cure Brain Cancer for an unforgettable journey along the Great Wall of China, raising funds for drive innovative clinical trials....

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  Challenge Brain Cancer

  January 16th, 2025 May 12 to 31 2025

  A virtual fitness challenge, to conquer you fitness goal for the month and raise vital funds to support people impacted by brain cancer. ...

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Get inVolved: Navigating Glioma Together webinar series

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  Understanding Seizures: Get inVolved webinar 5

  August 17th, 2026

  Hear from Dr Julia Thompson, Neurologist, as she helps us better understand why seizures occur in IDH-mutant glioma, what they might look like, and ho...

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  Living with Uncertainty: Get inVolved webinar 4

  August 17th, 2026

  Living with brain cancer can be challenging and bring up many emotions. Hear from Prof Haryana Dhillon and Dianne Legge, as together, they navigate th...

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  Planning for Parenthood: Get inVolved webinar 3

  August 17th, 2026

  Hear from Dr Alex Yuile, Medical Oncologist and Dr Boski Shah, Fertility Specialist and Gynaecologist, as they explore key aspects to consider when planning for parenthood, while living with glioma. Discussion centers around the impact of glioma on fertility, exploring fertility preservation and navigating options to help you make informed decisions. This webinar is a […]...

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